Printable tools, free to use
Care Passport
A one-page snapshot for emergencies and new caregivers — who the person is, how they communicate, what helps, what to avoid, and who to call. Print it, fill it in, keep it on the fridge.
What Works Sheet
A first-shift handoff for any new caregiver: the strategies, routines, and supports that actually work for this person — captured on a single page so nobody has to learn by trial and error.
Organizations we stand with
Family Support & Advocacy
National organizations that help families navigate services, connect with peers, and advocate for the people they love.
- The ArcNational
The largest national community-based organization advocating for people with intellectual and developmental disabilities.
- Center for Parent Information & ResourcesNational
The hub for the Parent Training and Information Centers (PTIs) located in every state.
- Family VoicesNational
A national network helping families navigate care for children with special health care needs.
- Parent to Parent USANational
Connects parents of children with disabilities with trained, experienced peer mentors.
Crisis & Mental Health
Immediate support and ongoing mental-health resources.
Benefits, Funding & Financial Planning
Programs that fund care and protect long-term financial security.
- ABLE National Resource CenterNational
Tax-advantaged ABLE savings accounts that don't jeopardize means-tested benefits.
- Medicaid Home & Community-Based ServicesNational
Federal information on HCBS waivers that fund in-home and community support.
- Social Security (SSI / SSDI)National
Apply for and manage Supplemental Security Income and disability benefits.
Education & Transition to Adulthood
Special-education rights, IEP support, and the move into adult services.
Condition-Specific Organizations
Deep, condition-focused communities and clinical resources.
- Autism SocietyNational
Connection, education, and advocacy for autistic people and their families.
- National Down Syndrome SocietyNational
Programs, advocacy, and resources for people with Down syndrome across the lifespan.
- Special OlympicsNational
Sports, health, and inclusion programs for people with intellectual disabilities.
- Autistic Self Advocacy Network (ASAN)National
Autistic-led advocacy, policy, and plain-language resources — 'nothing about us without us.'
- EastersealsNational
Disability services across the lifespan — early intervention, therapy, employment, and caregiver support.
- United Cerebral PalsyNational
Services and advocacy for people with cerebral palsy and a range of other disabilities.
- Brain Injury Association of AmericaNational
Information, support, and advocacy for people living with brain injury and their families.
- Epilepsy FoundationNational
Education, support, and seizure first-aid resources for people with epilepsy.
For Siblings & Caregivers
Support for the people doing the supporting.
Rights, Legal & Future Planning
Guardianship, special-needs trusts, advocacy, and the legal protections that secure a person's future.
- National Disability Rights NetworkNational
The federally mandated Protection & Advocacy agency in every state — free legal advocacy for people with disabilities.
- Special Needs AllianceNational
A national network of attorneys focused on special-needs trusts, guardianship, and disability planning.
- DREDFNational
The Disability Rights Education & Defense Fund — disability civil-rights law, policy, and training.
- COPAANational
The Council of Parent Attorneys and Advocates — special-education rights and IEP advocacy.
Respite & Caregiver Wellbeing
Support for the people doing the supporting — because no one can pour from an empty cup.
Find Local Help
Getting from a national organization to the services in your own county.
The directory links above point to independent organizations and are provided as a convenience — Mallowa isn't affiliated with them. Always verify program details directly with each.